Caregiving

Respite is a short break from caring for someone who needs daily help. Caring for a loved one can feel meaningful, but it can also be stressful. It can affect a caregiver’s emotions, physical health, finances, and relationships. Research shows caregivers of people with dementia often experience higher daily stress because the illness is long-lasting and challenging.

Caregivers and care recipients should discuss respite soon after diagnosis and include it in the long-term care plan. Many people wait because care needs seem manageable at first. However, planning early allows the person receiving care to share their wishes, helps everyone adjust to a respite provider, reduces feelings of isolation, and encourages healthy self-care habits before burnout occurs.

Many caregivers wait too long to ask for help and become overwhelmed. There is no perfect way to manage this journey, but seeking support and practicing self-compassion can make it easier.

Respite may be provided by paid professionals, family, or friends, either at home or in a day center. The National Institute on Aging’s Coordinating Caregiving Responsibilities Worksheets can help divide tasks among helpers. Additional caregiving tools are available on their website.

Cost and uncertainty about where to start often prevent families from finding respite care. The Family Caregiver Center of New Mexico can help you navigate your care plan at 505-494-4021 or info@familycaregivernm.org.

For help finding respite providers, visit the ARCH National Respite Network & Resource Center for guidance and resources. You may also review the respite registry list of day programs and home health agencies at the link provided.

List last updated December 2024

Download the List of Respite Providers Here

To add, update, or remove your name from the registry list, contact the Office of Alzheimer’s and Dementia Care at OADC@altsd.nm.gov.

It is not possible for one person to provide constant care for someone with dementia. Many people find it hard to ask for help because they worry about being a burden or feeling weak. However, everyone needs support at different times in their lives, and asking for help is a part of being human. If you are a caregiver, it’s important to recognize what you need and communicate that to others. When someone offers help, be specific about what you require, and consider making a list so they can choose how they can help.

Caregivers often wear many hats, such as being a spouse, parent, or employee, which can make their responsibilities feel overwhelming. Balancing these roles while caring for someone with dementia can lead to feelings of stress and frustration. Setting boundaries is essential; this means knowing your limits and discussing them with others to share responsibilities more evenly.

Finding outside support can also be beneficial. Joining support groups or seeking therapy can help caregivers feel less alone and provide useful advice from others who understand the challenges of dementia care. Taking breaks, or respite, is crucial for caregivers to recharge. Planning enjoyable activities during this time can lead to greater satisfaction. Simple goals, like spending time with friends or engaging in hobbies, can make a big difference in your well-being.

Taking care of yourself is important but it can be hard to make the time to do it.

Tools for Self-Care

It’s always good to have a safety plan for when you feel overwhelmed.

• Caregiver Care Packet and Emergency Plan
  Download the Care Packet PDF
• Caregiving Responsibilities Worksheet
  Download the Worksheets Here
• 5 Senses Grounding Technique
  Download The Worksheet PDF

Easy mindfulness techniques to calm yourself

It can be hard to calm ourselves down and stay in the moment when we feel overwhelmed. Try out different activities, it may take trying a few;  maybe it’s one thing or maybe you find a few ways that help. Simple activities can include breathing exercises, taking a short walk, standing outside, thinking of a happy place/person, singing, and more. There is no right way to do this; it’s what feels and works best for you.

Caregiving Tips

1. AARP How to Avoid 10 Common Caregiving Mistakes
2. AARP AARP Resources for Caregivers and their Families
3. Alzheimers.gov Tips for Caregivers and Families of People With Dementia
4. Alzheimer’s Foundation of America The Apartment: A Guide to Creating a Dementia-Friendly Home | Alzheimer’s Foundation of America